There is no way that Caleb has a Hemi-Fontan headache. He is MUCH too happy to be suffering from even a tiny headache. Today, we took a stroll down the hall and he smiled and cooed at everyone that would look at him. You would think he was running for mayor.
Caleb's morphine wean from 20 to 10 went well today. He had one spit-up this morning and some really messy diapers (both possible signs of withdrawal), but that was it. The plan is to go off the morphine tomorrow to see what happens.
Tomorrow morning, Caleb has his discharge echo and EKG. He will be sedated, so he won't care.
If everthing goes well tomorrow, they are thinking that Thursday should be our day to go home. I couldn't be more excited.
It seems that the Hemi-Fontan surgery either goes really well or really bad. Baby Aubrey came in for her Hemi-Fontan in early December and is really struggling. She is still on the ventilator and if things don't go well, they are going to take down her Hemi-Fontan and replace her shunt. This is not a situation anyone wants. Please pray for her and pray for strength for her mom.
What wonderful news!! Praying things continue to go well!
ReplyDeleteWhat a personality he has. So glad to hear your good news!
ReplyDeleteSo happy for you, Caleb and the family. It's good news! Loish
ReplyDeleteLOVE the picture! I am so glad that he is doing so well. We look forward to seeing him at home where he belongs.
ReplyDeleteLove,
Aunt Sarah
Great picture of you Caleb! We are so excited to hear you are coming home and we'll pray for your friend Aubrey & her family :)
ReplyDeleteC, H & A
Fantastic news! Look at him smile. We are so thrilled that everything is going well. We've been thinking of you all. Well done Caleb!
ReplyDeleteLots of love, Sara, Jochen & Tatiana x
What wonderful and happy news you've given us this week - it's wonderful!! Hope you are all home safe and sound really soon.
ReplyDeleteJohn and Sue in South Haven