Friday, October 8, 2010

Thursday & Friday, October 7 & 8

I did not post last night because I was busy juggling. I went home yesterday afternoon and Phil and I took the Big Three to ArtPrize. We had a great time and enjoyed being a family in our native habitat. When we got home, I had to work on a project that I needed to have done for work today.

Caleb is still advancing on his feeding. Now he is up to 14 mL/hr with a goal of 20 mL/hr. He seems to be tolerating it very well. He has spit up a couple of times, but nothing that is a big concern. Hopefully, we will get up to full volume tomorrow. Then we will start adding back the formula.

They were going to start his Viagra today, but decided to wait until Sunday or Monday. Once again, they don't want to push Caleb too hard or make too many changes at one time because then we can't pinpoint the cause if there is a problem. I am trying very hard not to get frustrated with our progress. I keep telling myself that the longer it takes, the older he will be and hopefully, we will are more likely to be successful. He has not gained any weight since his big bleeding episode on Monday night, so that is frustrating too. Maybe tomorrow.

Caleb got two doses of morphine in the last 24 hours. This concerns me. As I have mentioned before, this doesn't happen when I am here. I leave early on Thursday and get back later on Friday and he needs two doses. I talked to the nurse practioner about my concerns. I understand that he is spoiled when he can be held for as long as he wants during the day when he is fussy, but I don't know how to fix it. It doesn't seem like a good idea to give him morphine every time he gets inconsolable, but I also understand that he can't be held each time he is fussy at night and he can't just cry it out like a normal baby. If he were home, we would put him in a swing, snuggle him, or carry him around in a carrier. We don't have that luxury here, so hopefully we can find some solution that doesn't involve drugging him constantly.

As I re-read this post, it sounds like I may be getting frustrated and tired. While this is true, I am seeing progress and am still enjoying the time I get with Caleb each day. Hopefully, our progress will continue and soon we can start to see the light at the end of the tunnel.


  1. To those of you following Jen's blog and wish to attend, Caleb's benefit dinner is tomorrow night (Sat. October 9) at Alto Elementary School from 4:30 - 8:00 p.m.

    If you need directions, email
    Thank you.

  2. I will be praying for you. Is there anything that you need to help your stays at the hospital more comfortable?