Today was a big day for Caleb and everything that happened went great!
Caleb had his discharge echocardiogram today and everything looked just the way it was supposed to. The clot has shrunken dramatically, so they were able to stop the Heparin and just use the baby aspirin that all babies with shunts take. The last IV medication is gone!
Caleb also had a chest x-ray this morning and his lungs look very good. He is still doing fine breathing on his own and the diuretics are working correctly.
Caleb had his hearing test and passed that. Babies that are on the ventilator for more than two weeks are at an increased risk for hearing loss, so he will be tested more often to make sure there are no problems.
The speech therapist checked on him to see how he was doing taking a bottle. He sucked down 15 mL while she was there. His sucking is not perfect, but it works and she showed Phil some tricks to make it more efficient.
Caleb has been tolerating the 24 calorie breastmilk well, so they started to wean him off the continuous feeding. Because he has been fed continuously for so long, the first step is to give him the same amount of milk over a shorter period of time to give his stomach some time to grow. His goal feeding volume is 23 mL/hour, so today, they started him with 46 mL fed over a period of one hour and then turned off the pump for an hour. He has been doing that for 11 hours now and is still tolerating it well.
The nurse practioner told Phil that their goal was to discharge him on Friday. This is the first time we have ever been close enough to discuss a date. We were both ecstatic. I feel like we have a lot to do and learn in the next 3 days and if today was any indication, we do!
I am going to put a copy of the blog postings and the comments in Caleb's baby book. I would like to put a list of the people that have been following the blog in his baby book as well so he knows how many people were checking on him and praying for him. If you would like to be included in the list, please put your name in the comments section on the blog and include how you came to read the blog if you would like. The easiest way to comment is to click on the word "Comments" at the bottom of the post, scroll down to the "Post a Comment" section, write your name and how you came to read the blog (if you want), click on the arrow next to "Comment As" and select Anonymous, then click "Post Comment".