Ella, Sam and Maeve's First Day of School
Caleb Watching Mom
We called Caleb's nurse this morning to check in on what happened overnight. He was well behaved and they had no problems.
Ella, Sam and Maeve all had a good day at school. We had backwards dinner (dessert first at the Ice Cream Caboose) and discussed their day. It was fun and very normal.
Grandpa and Grandma Wieland came to Ann Arbor to hang out with Caleb today. They had to wait around for several hours until all of the procedures were completed on Caleb's neighbors, but they each got to hold him. Holding Caleb is a four person project, one person to hold him and three nurses to get all of the junk settled. He was better behaved today, did not turn purple with fits and did not drop his oxygen saturations.
Caleb had his umbilical line removed today and had his arterial line replaced with a venous line. Now we are down one line and the associated tube to keep it flowing. Two less things to fight with to hold him.
I got back to Ann Arbor around 10:00 pm and stopped to check on Caleb. He is still doing excellent on the high flow oxygen. He did not have any weird heart issues when they removed and replaced his lines. He was awake and looking around when I got there. They are weaning him off the IV medication to control his blood pressure and moving him to an oral medication. They are trying to wean him off the IV diuretics, but when I left, they weren't sure if that was going to work yet. If he doesn't keep peeing when he needs to, his fluids will build up and it may make it harder for him to breathe.
It sounds like we are making real progress so far this week. Tomorrow, I hope to figure out what the next step is after breathing on your own!
Dear Jen, So Happy the children had a good 1st day back to school! That's always a relief for Mom I think :o) I imagine Gramma & Grampa were thrilled with the opportunity to hold precious little Caleb! What a Blessing Grandparents can be to our little ones (AND US!) in times of need. Backwards dinner is such a swell idea! I always tried to do something special for our girls on the 1st and last days of school. So happy to hear Caleb is making progress! Hugs & prayers for a good night's rest :o)
ReplyDeleteGlad to hear Caleb is doing better! I saw all three kids yesterday at school with smiles on their faces! Will continue to pray. Keep the faith. I can't imagine how rough this is on you and the family. God will not give you more than you can handle. Hugs to all of you. God Bless.
ReplyDeleteLove,
Katie, Steve, Noah and Emma
dougherty's - Joe, Carly and I went to cabin for weekend and Carly prayed for Caleb at every meal. She says she prays for him everyday and has asked all her friends to pray too. SO you have Middleville 4th grade praying! God certainly is hearing all this commotion. Glad day one at school went well. Kids look perfect in picture. Love and Prayers Lila Lee
ReplyDeleteLove the school pic of the kids :-) Maeve is on the front page of the Ledger! Katie Barnhart is getting you a copy I think...if not, I'll save mine! So glad to hear that Caleb continues to improve each day!
ReplyDeleteJen - prayering for little Caleb along with you - both need all the strength you can get. Sounds like Caleb is progressing each day :)
ReplyDeleteMisty