... then we rest.
When I got to the hospital this morning, Caleb was back on the high flow air. He ended up going back on around 1:00 this morning. Each time, we have made it around 10 hours off all of the support before needing to go back on.
He was very fussy this morning. Even with his methadone and pain medicine, he was crabby and mad. I was able to get him settled back down and he fell asleep. I talked to the nurse practioner and she reassured me that we will try again tomorrow. She said that she feels like a broken record telling me that we will give him a day to rest and try again.
This afternoon, he took a good sound nap from 2:00 to 4:00. When he woke up, he was much more friendly and his numbers were much better. He settled down quickly when we made him mad.
Right now, we are beating on his chest every two hours or so. He will have another chest x-ray tomorrow morning and if things look good, we will give coming off the air a third try. Hopefully, it will work this time.
Yesterday, his umbilical stump finally fell off (only about three weeks late) and today, they removed the wires from his chest for the external pacemaker. Removing the pacemaker wires is a nice step, showing they are not real worried about dangerous heart rhythms. Other than being really scarred up, his chest looks almost normal now. Each day, we make at least a little progress!
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It relieves my anxiety to read your blog on the gains and backsteps our baby Caleb has taken. We are praying for you, your family and most of all the competent care being extended to this newborn baby.
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