Today, Phil and I got to go out to breakfast together in Ann Arbor and go sit with Caleb. My brother and sisters took the Big Three to the Susan G. Komen Race for the Cure this morning. We have participated in the walk for the past eleven years in honor of our mom who passed away ten years ago from breast cancer. The kids wanted to go to the walk and Phil and I got to spend some time together alone.
Caleb's chest x-ray looked worse today, so they put him back on high flow air at 4 liters. About ten minutes after we got to the hospital, Caleb threw up all over me. I am concerned that he might have the cold that everyone seems to have right now. He has a cough (the fact that he can cough is good though) and the stuff he threw up was mucus, not milk.
Even with the cloudiness in his lung, his oxygen saturation levels were very good. He slept most of the day and seemed to be quite comfortable with no more major spit up episodes.
They are going to do another chest x-ray tomorrow and see how that looks. They are continuing the thumping on his chest to keep his lungs as healthy as possible. They will draw blood again tomorrow and see if his white blood cells are increasing, signaling that his body is trying to fight off something. Hopefully, tomorrow morning, we will have a much better feel for what is going on.
The nurse practioner said that they will be checking in with the surgeon the beginning of the week to see if he has any idea of why we are unable to come off the air. It is quite strange. Caleb doesn't need any supplemental oxygen. Until now, he has only needed a marginal amount of air blowing up his nose to keep his lungs healthy. Half the time, the nasal cannula is not even in his nose, but blowing somewhere around his face. If he needed more support, it would make more sense. We have been joking that maybe it is a security thing and that next time they try to take him off, we should tape the nasal cannula to his cheek so he can still hear and feel it. At this point, I wouldn't be surprised if they try it!
As you may have guessed by the previous posts and the amount of time that I have been able to stay in Ann Arbor, we have gotten a ton of help from our family and friends. Phil and I are both blessed to come from great families with parents and siblings that have gone above and beyond to help us out. We have received help and encouragement from the wonderful people in our community. To all of our family and friends - we would like to let you know that there is no way we could have done this without you. You have no idea how important it is to us to be able to be with Caleb in Ann Arbor and with Ella, Sam and Maeve in Alto. THANK YOU!