I was glad to get back to Caleb this morning. Yesterday was the first day I had not been with him in ten months. I really missed him!
Caleb is doing well today. They are working on tweaking his Captopril (the medicine that helps to reduce his blood pressure) and his diuretics right now. His oxygen saturation levels in his blood are good today and he seems to be quite comfortable. They might look at reducing his oxygen flow level tomorrow. His is now on room air at a flow rate of 4. He will be getting his PICC line on Wednesday now. The Catheterization Lab was busy today and the Nurse Practioner did not want him to have to go without food for very long waiting for an opening. They want him to get as much nutrition as possible to gain strength.
The Nurse Practioner seems worried that we are going to get impatient with the small amounts of progress that we are going to see now. Tweaking and fine tuning will probably be very tedious, but if we make progress over the course of the week, we will take it!
As you may guess, the updates are probably going to be short and boring for the next couple of weeks. They might deal with more common baby stuff. Today, I got to hold him after his bath. The nurse had taken his leads off to clean his chest, so all he had was the oxygen and the NG tube. I held him while I was standing up and it felt so normal. He settles down alot of the time when Phil and I hold him. I try to lay him down when he is getting sleepy so he is not totally spoiled when we get him home. However, I am absolutely willing to risk spoiled at this point!