Sunday, November 28, 2010

Caleb's new Harley hat from Grandma and Grandpa Wieland


Sleeping with Dad


Another juicy smile

Last week was another busy week. You would think with a couple of days off of work for the holiday and three days with no school, we could get caught up a little, but that does not seem to be the case. We did have a wonderful Thanksgiving and definitely have a lot to be thankful for!

The visiting nurse came on Tuesday. Caleb's weight was 9 pounds, 13 ounces. That is an increase of 5 ounces since last week. She came earlier this week which put it just after diuretics but before the 10:00 am feeding. We will have to see this week if he really had 5 ounces of gain or if some of it was timing. Either way, we are closing in on 10 pounds.

Caleb's oxygen saturation was 77% and his heart rate was 160. The heart rate was high, but he was pitching an epic fit at the time. Everything still looks good.

Caleb had been waking up with gunky eyes and on Thursday, he started to show symptoms of a cold. By Saturday morning, he was pretty snotty and his eyes were nearly gunked shut when he woke up. I was able to get him in to the pediatrician on Saturday morning. We got to see Caleb's regular pediatrician which was really good. Our kids have gone to the same pediatrician since Ella was a baby and I wouldn't trade him for a million dollars. He said that Caleb may have some pinkeye and told us to use some drops (we still have some from the last time Maeve had pinkeye, so I didn't even need to buy any!). He also said that Caleb's cold has not moved to his lungs and everything sounded just fine. It is crazy how scary a cold can be when you are dealing with a compromised heart and lungs.

Today, Caleb was looking and feeling much better. He was awake and smiling some today and much less congested. He has not been drinking well from a bottle at all, but drinking when you can't breathe through your nose is pretty tricky. Hopefully, he will keep feeling better and we can make some progress.

As hard as it is to believe, some of the babies that were born in August with Caleb are heading back in for their second surgery. Colton and his family are heading back to Michigan from Kansas for his pre-surgery work and his surgery scheduled on Friday. Our friend Ben is struggling and really needing his surgery that is scheduled for the next week. Both of these babies have a heart condition very similar to Caleb's, just the other side of their hearts. Please keep them in your prayers.

Just a note - because Caleb took so long in the hospital for his "first" surgery (consisting of the four surgeries) and is still so small, the doctors think that his "second" surgery will be delayed until at least February.