Wednesday, November 3, 2010

Thursday, November 4, 2010

First bath at home

Asleep in the swing - Sorry the rotation is beyond my control

After Caleb pulled out his NG tube

I am sorry that it has taken me so long to post a new entry. It is amazing how far behind you can get in 11 weeks!

We have been very busy since we have gotten home. Between giving Caleb his medicines, feeding him every three hours, pumping milk to turn into his high-octane fuel and trying to keep him clean and dry, there are not enough hours in the day. Add to that a pediatrician's appointment on Monday, a visiting nurse appointment on Tuesday, a cardiologist appointment today and endless phone calls for insurance and billing issues, and you get a hectic week.

The great news is that Caleb is doing wonderful! The pediatrician said that he looked fine. For his age, he is at the 12th percentile for length and less than the minimum value for weight and head circumference. He weighs 8 pounds, 15 ounces, an increase of 1 pound, 3 ounces from his birth weight. He is being scheduled to get the RSV vaccine, which will hopefully give us a level of protection from the really nasty stuff that goes around in the winter.

His appointment with the cardiologist also went really well. His heart rate, blood pressure and oxygen saturation were all where they wanted them. His EKG looked normal for Caleb, not normal, but normal for Caleb. He goes back in one month for another checkup. The plan is to check his weight once a week to make sure he is growing properly. He will probably have another heart catheterization in January to make sure that his heart and lungs are acceptable for the second surgery.

Caleb has been fussy and has been sleeping a lot. He does have periods where he is awake, alert and busy watching what is going on. He is also smiling every once in a while. I have yet to take a picture, because I am too busy enjoying the smile to grab the camera. I promise to get one soon and post it. It is beautiful!

The kids are adjusting very well and other than Caleb being loud, they seem to enjoy having him home. It is amazing how quickly I have gotten back into the normal routine of home.

Phil and I would like to thank everyone for all of your help and support over the past months. We are so very lucky to have such amazing people that love and care for us!

My goal is to try to post a weekly summary on the weekend with new pictures so you can see how he is growing.


  1. Oh Jen, you must just sit there wondering if you are really at this real? lol We are so glad that everything is going well!!! We are continuing on praying for Caleb to stay healthy and that you guys just totally enjoy him!! Praise God and what a testimony you guys have been over the last several months!! Hope you have a great day today!!

  2. Praise the Lord, you are home with Caleb. Our family is continuing to pray for Caleb and also the rest of the family for health and rest. I have so enjoyed following your post (and cried with each set back)how wonderful to see Caleb being held at home (even a crying photo)our whole family is praying, even the children ask after "Baby Caleb" almost daily.What a blessing he is not only to you, but to others as well. God will use Caleb in amazing ways, as He already has by causing my own children to draw closer to Him. Thank you for sharing with us.