Caleb is really struggling today (and so am I). He is going in shortly for a heart catherization to see if they can find what is causing his low oxygen levels. He was up and down throughout the night and they are unable to wean him off any of the drugs, the nitric oxide or reduce the amount of ventilation. My understanding is that if they were still doing everything 100%, he would be stable. The problem is that if we have to keep everything at 100% to keep him stable, we can't move forward and we have no where to turn if things get worse.
The gut feeling I am getting from the cardiologists is that we will end up going back to surgery and rerouting the shunt to pick up more blood flow (or more consistent blood flow) to his lungs. They are planning on making a decision early this afternoon.
Please keep praying for him.
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Thanks for the update. You, Caleb and the family will be in my thoughts! Love you!
ReplyDeleteJen & Phil - We so appreciate you keeping us updating- thinking of you all the time and sending lots of good thoughts and prayers from South Haven. John & Sue
ReplyDeleteStill praying for his precious life.
ReplyDeleteSometimes things get worse before they get better. I'm hoping and praying that things only get better from here. Love and hugs to all of you!
ReplyDelete--Chas
Still praying for Caleb and for God to give you and Phil strength through these tough times.
ReplyDeleteTake care,
Gay
Still praying for you and Phil. May God continue to give you His strength and give the doctors wisdom. Thanks for updating us Jen. Hugs
ReplyDeleteHallie
Prayers are going up for Caleb and you and your family.
ReplyDeletePraying for your family. May God watch over each one of you, and guide the doctors in the right path. Baby Caleb is in our thoughts and prayers. Take care, and love you all
ReplyDeleteLindsey
Praying for little Caleb and all of you.
ReplyDeleteCarol Kind
our prayers continue for God's renewed strength for Caleb and wisdom for the dr.'s.
ReplyDelete