We just got our first update. Caleb's MRI looked fine. All of his lines are in and went in without too much trouble. They are just getting ready to open his chest. So far, so good!
On August 17th, our family grew with the addition of our fourth child, Caleb. Caleb has a congenital heart defect (tricuspid atresia with double outlet right ventricle and malposed great arteries). Caleb has completed all three stages of the Fontan pathway and is an active three year old functioning amazingly well with half of a functioning heart!
Thinking of you - will check in regularly! Emma & Ted xx
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