We had our doctor's appointment today. We had an ultrasound and the baby looks fine with the exception of his heart. His heart rate was 158, which is right where it is supposed to be. There is no additional fluid around his heart, which is one of the things that I was very worried about. Everything was as good as we could have hoped!
Our next appointment is April 27th to check on the heart again and assess his growth. He will be 23 weeks at this time. If everything looks good at this appointment, the doctor will get us connected with the pediatric cardiologists at the University of Michigan.
I have been doing some research on the pediatric cardiology program at U of M. It is amazing and we are very lucky to be so close. The surgeon at U of M has pioneered a lot of the work that surgeons all over the world are performing for Hypoplastic Left Heart Syndrome. In the early 1980's, this condition was nearly always fatal. Now the surgeon has a success rate of 80% to 85%.
Our baby has Hypoplastic Right Heart Syndrome, which is much less common and therefore does not have the track record with successful procedures. At least we are in the right place and will not have to travel halfway across the country to get to a qualified hospital.
Thank you for all of your prayers and I will keep you posted on any new information!